ENDO1000 Marks One Year of Groundbreaking Endometriosis Research and Awareness

The #TALKEndo campaign, part of the pioneering ENDO1000 project, marked its one-year anniversary on October 27, 2025, with a reflective post on Instagram celebrating the progress made since its launch.

First announced at the University of Edinburgh’s Institute for Regeneration and Repair on October 28, 2024, ENDO1000 set out with an ambitious goal — to raise £1 million and collect data and biological samples from 1,000 individuals with endometriosis over two years. The aim is to accelerate diagnosis and uncover new potential treatments for a condition that affects around 1.5 million people in the UK and an estimated 190 million worldwide.

Described as the first study of its kind to take a “whole-person” approach, ENDO1000 explores the interplay between genetics, diet, symptoms, and personalised care. The project is also proudly inclusive of all individuals affected by endometriosis, including transgender men and non-binary people.

The accompanying #TALKEndo campaign was launched to break the silence surrounding the disease. With a keynote address from co-director Professor Andrew Horne and a passionate call to action from founding ambassador Dr. Marie Macklin, the campaign continues to amplify the voices of those living with endometriosis and raise awareness of its often devastating personal and professional impacts — summed up by the phrase “endometriosis can end careers.”

Over the past year, ambassadors, researchers, and supporters have worked together to move closer to the £1 million fundraising goal through events, partnerships, and public engagement. The campaign’s anniversary served not only to celebrate progress but also to remind the public how vital continued support is in tackling a condition that remains underfunded and frequently misdiagnosed.

To follow the project’s journey and learn how to get involved, visit endo1000.com or search #TALKEndo on social media.